Wednesday, December 28, 2016

Getting Ready to Fight a Lawyer....

When I first got home from the hospital, I started trying to apply for SSDI. This turns out to be a moot point, because although one would expect that the papers one would wish to fill out to be on the SSDI site, THEY DON'T EXIST.

What one DOES find oneself doing is a "can you qualify for SSDI" - which, strangely, appears to be TAKEN OFF the internet for the Law Office of Robert J. Levine.

This law office is BOGUS! If one accepts their "you qualify" phone call and one lets them "get started", they'll ask for 25% of Social Security (which the Social Security Office itself claims there IS no "lawyer fee" taken out each week), they'll tell Social Security that you DON'T have any form of short term disability (which I WAS getting through Cigna right up until THIS WEEK), and basically SCREW you in order to MAKE that 25% fee THAT THEY ARE NOT ALLOWED TO DO!

In other words, I may be taking this to Joe Bornstein to have these idiots dis-barred in the State of Maine.

GRRRRRR!

It's NOT enough to have something the size of a baseball taken out of my head.

It's NOT enough to be hindered in my job because all the things that I went on vacation able to do.

It's NOT enough to be unable to work, not because I don't WANT to work, but I am unable to so those things that I really NEED to do.....

No! THAT isn't enough.

I have to have some DIPSTICK lawyers office INSIST that they "represent" me for this - WHICH THEY DIDN'T DO A THING FOR SHORT OF INSIST THAT I HAD ALREADY GIVEN NOTICE (I'm working on my "letter of resignation" as we speak), and wants 25% of the money that I ALREADY PAID IN!

So, if you've come across "Do you qualify" information and have gotten any notice from Robert J. Levine, TURN THEM IN TO YOUR LOCAL SSDI OFFICE! They INSIST that there's a "lawyers fee" that Social Security DOES NOT TAKE.

Go DIRECTLY to the Social Security office or CALL THEM DIRECTLY to get the PROPER forms.

DO NOT DO ANYTHING WITH ROBERT J. LEVINE!

Now, if you will excuse me, I have to find the Law Offices of Joe Bornstein and see if these people can be disbarred in Maine.......

Monday, December 12, 2016

What day is it today?

The result of increased Temodor, which imitates a migraine, making one vomit intermittently (but never a pill) was, for one as accustomed to migraines as I, simply bad time for a migraine. I took my pills, tried my best to combat the one day (or, in this case, two days) that I seemed not able to keep down the meal for an hour (just enough to suction all moisture out).

Bad combination when on this drug.

So, after my husband being kind enough to check with the nurses (while I slept after my first pill of the day), drive me to an appointment, stay with me through it all, pick out a tree at our favorite farm stand, get my perscription, and settle me back in (with an EXTREME rash because my body was just starting to react to the extreme medications when we first got to the hospital), and let me get proper sleep, he TRULY deserves added vacations because of me!

Wanna see what "too much medication" does? (No monkey business, guys, as this is a fashionable length for my loosest nightie here.)


*le sigh*

Funny thing is that I can't, for the life of me, get this to come out in a mirror image or a selfie. (In other words, I can see this on my body, but when I look in the mirror, I look normal.....and the camera/phone doesn't see this in the mirror......weird......)

Another thing is it's already 13 days until I've got to have packages wrapped for the grandkids to open. Thank goodness Grampa has one day this weekend for us to do it all - or as much as he can do with me. Hopefully, in another day or two when I get the itchies under control, I can take a quick shopping for Grampa and get something for him that I know he'll like. (I think other things, like taking care of the weeds in the garden he's wanting to put in, will be part and parcel since I can't seem to go a whole day able to speak, so no job for me.)

Something tells me this is going to be a "gift certificate" year....

Blessed be, my lovelies, and may you NOT be shocked by anything after the "knee photo" above.

Thursday, December 1, 2016

I'm Dreaming of a Bare Headed Christmas

December 1st was visit two to the Chemotherapy Team. I had recently re-read all of the "symptoms" I should be watching for....and wouldn't you know, the Temodar causes "hair loss".

*le sigh*

And here I thought I would be done with the post-radiation sort-of mohawk soon...

Now comes the next big decision: To let my sweetie give me another "buzz cut" to try to get the "peach fuzz" to grow in, or to go through Christmas with the slowly growing/somewhat screwy semblance to a mohawk?

But folks, that's not all!

Bill was informed when he went to the Cancer Center that the Temodar I was going to need would be AT the Cancer Center for the visit. The doctor increased the dosage (which is, we understand, typical for Chemo Two visits), we went to the pharmacy...and now I'm hoping for a Fedex package before Monday, when I'm supposed to start TAKING the Temodar....

*another sigh*

At this rate, I'm going to have to get a job at the Cancer Center so that the meds get ordered on time!  

Monday, November 28, 2016

"I Found You, Kunta Kinte!" (or something like that....)

My grandmother, Addie Francis Burrill Dow, always insisted that we had Indian blood - or at least, that was how she said it. It was before the whole "Native Americans" thing had come about, as she passed away when I was 6 in 1967, and the native population was still reeling after almost 300 years of being "the enemy". She didn't seem to know how far back that the blood ran, but she and several of her children had the darker skin, black hair and brown eyes that came with it.

When I lost my dad to lymphoma in 1980, I made my first attempt at finding my roots, spending hours in the Fogler Library at UMO studying "The Book of Dow". It was a somewhat failed attempt at "finding my roots" because of one simple word: "conjuncture".  It seems that Robert Piercy Dow, one year before my dad was born, had ruled James Parker Dow as the son of Alexander Dow of China, Maine "by conjuncture", as James had passed away in 1876, there were no other Dows in the area, so therefore he MUST belong to Alexander.....

I ignored the word "conjuncture", traced Charles Dow all the way to a Thomas Dow who arrived here in 1639, and I thought I was done.

Until my uncle told me that, to the best of his knowledge, James wasn't Alexander's son.

Back to square one, and when I wasn't getting anywhere on James, I started on Addie and her "indian blood", finding the Mayflower romance of John Alden and Priscilla Mullen leading to a Burrill marrying their granddaughter and a "founding fathers of Corinna" gig. Not much else was available online, the Maine State Historical Society and the Maine Room in the Portland Library got VERY tired of seeing me - and there was not one mention of any "natives" in what I had available.

In 2002, I joined Ancestry.com, hoping to find more information. On James Dow, there was nothing. But on my grandmother's tree.....

I've been slowly plodding along, seeing each member to "the Old Country" before I give up on that line. As my aunt told us many moons ago, I've found the Scottish ancestor, the English ancestor, the Irish ancestor, the French ancestor, a couple of unexpected Dutchmen.....

And then, pay dirt!

There I was, about to give it up for the night, when the name "Margaret Oinguina Diguina Wampanoag" caught my eye - married a full year before the Mayflower came to these shores. Her father, Quanequina Chief Wampanoag and mother, Ora Ova Diguina, appeared there with her. There was some mention of "the Chiefs fourth wife" giving birth to "Margaret", which I suspect was given to her as a "Christian Name" before she married Gabriel Wheldon.

I sat for several minutes before the news properly hit.

I had finally found the "native in the woodpile", as one uncle called her.

She had married an Englishman a year before the big "Mayflower run" in Plymouth.

She was Wampanoag, the daughter of the Chief.

She appears again in my Merrick line, as a Hopkins relative married into the Merrick line and produced yet another part of my family tree, but that's not unusual. It seems the Nickerson line produced a Nickerson grandson who married a great-granddaughter who was a Nickerson....

Anyone want some moonshine while I continue on with the intermingling of the Redneck Ancestors? *grin*

At any rate, I can now understand my grandmother's lack of attention to the Mayflower. Why be all "my ancestors came over on the Mayflower in 1620" when you had a relative living here by the time the Mayflower came in?

Ah, Addie, your mother taught you right. There were English settlers well before the Mayflower and you came from one of them who mated with a Wampanoag maiden.

Now if I can only find James' parents.......

UPDATE 6/8/17:

An email got me searching for Gabriel - and it appears that, if he DID marry "Margaret", she was a second wife - but that doesn't agree with the other times or other children.

I'm still searching for the "indian in the woodshed"......

Tuesday, November 22, 2016

Thanksgiving Thoughts

I'm trying to encourage myself to start the "Turkey Day" stuff by going out to the freezer and bringing in the bird so that it can start defrosting. (It comes in SO frozen from the store that I've discovered in years past that this is necessary.) I need to get the garbage to the dump as it rarely goes well trying to get it there for the first week past Thanksgiving. I blame Arlo Guthrie and his popular song that takes place over Thanksgiving.....

Any excuse in a storm.....

*grin*

And I need to list my Thanksgiving Menu so that I can properly mark stuff off as it gets started on Thanksgiving morning. (Another thing discovered in past years. Bill's family had traditions I had never heard of. My family had traditions his family had never heard of. Between the two of us, we've come up with a menu that works - and it really works best if I have a list so we don't forget something like the "drunken turkey" glaze like I did one year...

Of course, it helps that I'm starting my day with some baklava that my husband got for me at Masa.....

Any port in a storm.....

(Realizing I have two "in a storm" references, I sign out, partially to begin the day, but also to refresh my dictionary skills.....)

Tuesday, November 15, 2016

Obamacare, Smobamacare

Well before we added on my brain surgery, we had a hospital bill. (Okay, "bills", but I was keeping up with them.) I had made an arrangement to pay $150 for two separate bills and was trying - in June - to get those bills condensated because, by the END of June, we were going to be adding Bill's ankle surgery to the list.

Well, anyone who's been reading my blog since June 24 knows how THAT surgery worked out!

Needless to say, my husband has taken on the bills, and about 40 days ago, he noted that one of the hospital bills stopped coming, so he called their billing team and asked them to "look into it"....

Yeah! They "looked into it" all right!

Seems that the billing team decided that, DESPITE what they have been told and DESPITE what the arrangements were, they decided that $150 per month on THIS bill was going to a collection agency....

Nice! So instead of sending US any form of "notice", or calling my husband's cell phone - or EVEN leaving a message on our home phone, we now have to deal with the collection agency.

And that's not all!

DESPITE being informed at every doctor visit that we're WELL BEYOND the point of coming up with a "fee" for every doctor visit (because I'm WELL BEYOND the "paid fee" for the insurance company), we keep having to contact the American Cancer Society to inform them that WE DON'T OWE YOU ANY MORE MONEY!

And Obamacare?

Yeah! That saved us TONS of money, including a "recovery room" for EVERY MRI visit. (There IS no "recovery room". I go in, they put the little tube in to deliver the "contrast", they pull it out and tell me "have a nice day", and I go out. NO RECOVERY ROOM!)

So did Obamacare save me ANYTHING?

No!

Has it saved my insurance company (which my husband gets through work) any money?

No!

Did ANYTHING get paid by Obamacare AT ALL?

NO!

And the worst part is that, in order to NOT get "dinged" by the Obamacare, I have to provide "proof of insurance" every year now with my taxes.....

So....

If you're one of the hospitals that we owe tons of money to, LOOK OVER YOUR BILLS BEFORE THEY LEAVE YOUR DESK AND MAKE SURE THERE IS NO "RECOVERY ROOM" (or other such things that I DIDN'T receive while I was there) TO MAKE US HAVE ANOTHER LOOK-SEE AT WHAT YOU BILLED THE INSURANCE COMPANY FOR! (It's bad enough that my husband is working 60 plus hours per week to have to do YOUR job for you, and I CERTAINLY hear about it when he's saying "How did you have a recovery room when they came to the room where you were at 11:30 P.M., put you on an elevator to bring you down for the MRI, then returned you to your bed upstairs?")

If you're billing me for some "fee" that you think you deserve, CALL MY INSURANCE COMPANY AND ASK!

If you're a newly hired Collection Agency for my "previous bill", WE HAVE BEEN PAYING EVERY BILL AND THE HOSPITAL HAS NO GROUNDS FOR HIRING YOU SHORT OF SOMEONE IN BILLING DECIDING TO MAKE YOU DO THE MONTHLY BILLING SO THEY CAN HAVE TEA AND CRUMPETS INSTEAD OF DOING THIER JOB!

And if you're representing Obamacare, WASN'T THIS SUPPOSED TO STOP THIS BILLING CYCLE STUFF? All I've seen so far is that the Obamacare has RAISED my bills because I use an independent insurance company instead of some government-funded "superpower" to lower my bills. How about something for those of us who've been paying ass-over-teapot to private insurance companies FOR YEARS before this so-called "benefit"?

Bill almost has enough in his savings account/"fishing" account to pay off one of our credit cards. While all you HOSPITALS are goofing around with recovery rooms for MRI's, billing me for things I never got, and basically fucking my life up, we're going to pay a credit card INSTEAD OF YOU!

Have a nice day, all you non-hospital people, and for the hospital people, HAVE A NICE TIME AT THE COURTS!

Thursday, November 10, 2016

Baffled, bewildered and.....Here Comes the Hulk!

I started off Monday of this week with Chemotherapy drugs. They're very specific about when I take them, with a two hour fast, then the Termador, then another hour of fasting before I can eat again. Despite the doctor telling me that most people do this just before bed (when I'd need to take my Keppra - all four pills - and a Phenyton), I find it easier to eat my lunch at 11:30, take the Zofran at 1:30, then the Termador at 2, when I take my second Phenyton.

You see, I've taken to taking a nap at about 2:30 - 4:30 most days, so as soon as I've taken my pills, I go and make myself comfortable on the futon. Some days, I get into the movie I've set up in the Blu-Ray and just lay there and rest. Other days, I find myself coming awake at between 4:30 and 5 o'clock.

And then it's up to Bill to figure out what I'm trying to say for the first little while, which sometimes is a half an hour, but often is a struggle for the evening...

Poor Bill.....

But then this Tuesday, with our election, I had to make a decision: Do I go out and hope for the best to do my duty, or do I take a loss and hope others make up that vote?

With all the negative ads, PARTICULARLY for the people who were from another district, but who were running the ads on MY tv, I went and voted.....and plan on hitting up the media stations with a "No Negative Ads" campaign for the next election.....

Why should I, in the Congressional Two catagory, be inundated with the Congressional One ads WHEN I DON'T EVEN GET TO VOTE FOR THESE A-HOLES?  (I never even saw an add for the people I needed to vote on!)

So, for all of you who live in the United States, we NEED to stop this! The negative ads, most of whom I noted in an earlier post, NEED TO STOP!  We need a system that limits the negativity, most of which I've been putting up with/turning off the ads on for TWO YEARS! AND MOST OF THESE ADS ARE FOR PEOPLE WE AREN'T ALLOWED TO VOTE FOR!

So, for those who haven't seen this, Hillary Clinton won the popular vote, but by the DNC laws, she lost the Electoral College. (Someone way back in the history of the DNC decided that this would be better than the "one vote per person", so you have your popular vote, which tells one story, and then you have the Electoral College vote, which, for instance, means that Maine gets 4 votes in the Electoral College. The results don't always match. It's how we ended up with Hillary over Bernie Sanders, because HE won the popular vote, but the people she paid in the Electorial College got her that vote. Karma, for sure, that Hillary lost by the EC vote after "pulling off" the win over Bernie, but.....) [Addendums one and two: two places one can find the Electoral College.
https://www.google.com/webhp?sourceid=chrome-instant&ion=1&espv=2&ie=UTF-8#q=electoral%20college&eob=enn/p//0/0///////////
and
https://www.archives.gov/federal-register/electoral-college/about.htm]

All things aside, the DNC has a BUNCH of unsatisfied people protesting Trump's leadership. It's their own fault for the Electoral College thing (more here: https://www.archives.gov/federal-register/electoral-college/about.html), and ALL of America would be satisfied with the "one vote p\er person" side of things. I'm going to let it all die down, then I plan on getting in touch with the House of Representatives and the Senate to get rid of that stupid bill. WE'RE ALL ADULTS AND CAN TAKE OUT THAT STUPID RULE!

Maybe, but 2020, we can have a DECENT election, with DECENT candidates, who ACTUALLY CARE whether or not we have a decent race!

In the meantime, as my family has insisted that I AM the Hulk, I have one thing to say to ANYONE who makes the mistake of coming into my yard over the next few months for this petition or that petition:

HULK SMASH!

For anyone who makes the mistake of stopping in for any other reason, let me get my mask down off the wall so that you can have the proper Deadpool response to your inquiry.....

Thursday, November 3, 2016

And The Results on the "Ghosties" is......

I realized that, after yesterday's "study", and MRI and a visit to the neurosurgeon, I forgot to come in to share the results....

The study, aimed at finding out how much of my brain is left and helping others to cope, baffled Sarah. (As I keep telling Bill, it's not what I can get to move past my mouth that bothers me, as inside my brain, I have all the things I've ever learned at my disposal....but I can't get it past my lips when I want to.) She pointed out to us that, when we're doing the "word game" (I'm given a letter and have to come up with words that begin with "A" or some such) that I'm coming up with things like "antigone"....

Then on to the MRI, which introduced me to another Millinocket boy who's down here making money instead of living where he'd prefer - another fun guy who was teasing a new tech as they inserted a tube so that they could inject the same stuff that showed the cancer on the first MRI in June.

And then there was the neurosurgeon visit, which we had to wait for the MRI results to come in before we could advance. The neurosurgeon brought up the last MRI I'd had in July, post surgery, which showed a lot of "ghostlings" that we'd done the radiation to destroy. The injection of the stuff that the MRI staff had put in came next - and the results were phenominal! Most of the little "ghost toasties" were gone!

In February, I'll have another MRI, another visit with the neurosurgeon - and hopefully, more good news. For now, I'm basking.....

Tuesday, November 1, 2016

November 1 - Are The Ghosts Still There?

Tomorrow marks the day for the MRI after radiation, which is also, hopefully, the day that the doctor tells me that we got all the little ghostlings. With any luck, I can be told that the chemotherapy can clear them all up and, by next year, I can be cancer free for several more years...

And then I realize how close we are to Thanksgiving and Christmas. My house, despite my best efforts, is a mess.  I have way too many things to do and no time to do them.

But my siblings have been helping, of a sort. The thing is this...

They all keep reminding me that Halloween was just yesterday. One can keep Halloween decorations up for two weeks.

*grin*

Of course, I can do some things as I'm be bopping around the house (in the morning, before nap attacks happen). There's yeast rolls, that can be baked, frozen and thawed as needed throughout the season. There are apples to use up as apple cake or pie that would be easy and can also be frozen...





Tuesday, October 25, 2016

Halloween, "The Mask" and Other Things....

I normally go "all out" for Halloween. This year, I've had to allow for my body to do what it can and let other things "rest"...

My body is putting out limited stuff, so sorry to my grandkids, but Yamma isn't going as haywire as she has in the past. NEXT year, however...

*grin*

Here's the Halloween stuff:




(Yeah, it's usually MUCH more than this, but.....)

There's an outdoor connection for the lights (I'll post one for Halloween when everything's lit up) and the little goy in the cage screams to be let out as well as the "door knocker" who shouts things at you....but those can all be found at my Facebook page......

I have to finish the pumpkin, which is 2/3 there after getting the guts out and some of the features cut in. It's going to be an owl (mostly because of the damage done by a worm). This is what IT looks like this morning:


And I've got the glitter red on the Deadpool mask, hoping to get the black on it today, so it looks like this:


Yeah. This would be my "I gotta get to that" list for LAST week that I finally got mostly done....

*giving enough of an eye raise to make the people in the back wonder if I'm checking my head for cobwebs*

SO

There are a few things on the porch to still go out (like the little Chinese type paper lanterns that plug into the porch light) and the little bits for these items above that I mentioned....

Maybe I can get them all done for THIS weekend....

*sighing and giving another eye roll, making them roll ALL around the eye*

I'll keep you informed as to whether I get these taken care of with the ordinary stuff I try to take care of. We'll see....


(Addendum 10/27/16:  The Pumpkin Owl)


(And progress on the Deadpool mask. It needs a second coat of black and a little work on the eyes...)





(FINAL ADDENDUM: 10/28/16: The mask is done! Huzzah!)


Wednesday, October 19, 2016

Keeping With Tradition

It's a sunny day - possibly the last we'll have for a while - so I'm getting my bald head out (under cover, as it's still cold) and getting my garden ready for Halloween. Part of this in getting the outside (very well connected so as to not cause a problem) lights out in a connecter box that will last through Christmas - or through spring, disconnected in the garage, if it's a snowy year.

Yes, today's the day I'm getting geared up for Halloween, a little late, some would say.....

The grandkids will (hopefully) be by before then to "approve" the things I throw out there, so I'm trying to be nice. Okay, black candle lights, you can go out. Sorry, witch-who-screams, you have to stay away a few more years.

The youngest is four, after all.

*grin*

Of course, I CAN throw it all out and say that it's the cancer meds.....

*pondering*

Thursday, October 13, 2016

Is This A Sign?

Cancer. We've been talking about it for a few months, I've been making ghost jokes about it...

But when talking my daughter's cat to the vet, it wasn't what I was expecting to hear...

Let me explain...

We moved to our current house in 1998, with a dog and a cat that we'd had. Our next door neighbor warned us of something that was partial to cats, and we started keeping Zippy, who had adopted us in Gorham, inside at night...

But that didn't stop Zippy from trying to cross the road when we let him out in the morning. A driver on his or her way to work ran him down...and we gave a friend's two kittens a place to live until they met the same fate. (Or at least we assume they did. Precious went out and never came back, so I assume that's what happened.)

Toby, the spaniel-type dog, who had odd fits of rage over small things, seemed to relax a bit when we adopted a collie/husky who was an "oops baby". (His mother wasn't supposed to have puppies because of an accident when she was young and his dad was a late neuter. Oops! Babies!) Bear was a little shy around humans, but he had the dog vs dog thing down pat. That is, until Toby went nuts on a neighbors kid and attacked him. We held him for ten days, as the law says we must, and then put him to sleep.

So, we had Bear and, briefly, the kittens...

And then we just had Bear...

When our daughter was about to turn ten, we decided to try one more cat - an inside one. We got a Maine Coon, hoping he would prove to be like Avatar, who lasted through 17 years...

But it wasn't to be so. Bear developed a tumor on his side. It was some sort of cancer they had never seen before. Tiger developed lymphoma. They passed within two months of each other, the cat in May and the dog in July. Bear was twelve and looked like Lassie. Tiger was nine and was the typical Maine Coon.

My daughter, in the meantime, adopted a dog in New York, a Shih Tzu/Pomeranean "oops baby" (he lives here.) One of the boyfriends adopted Meeko, who's lived here off and on....

And this time, it's me and Meeko, only five years old, who have cancers....


Why do I hear the theme song for "The Twilight Zone"?

Sunday, October 9, 2016

Radiated Ghost Remains

First off, thank you all for letting me get the political crap off my mind last time. The only problem I seem to have with staying home is that I tend to get bored.....and with this being an election year, I would throw my television out a window if not for Pandora and NetflixI *shudder*. It's bad enough to have the Bad and the Ugly up for grabs this year (don't know what happned to the Good), but all that negativity.....

Suffice to say, I'm listening to Pandora this morning. The stations were going on and on about tonight's debate and I didn't want to hear it. I'm staying positive....

And I'm too busy trying to test my ability to glow in the dark.....

*grin*

Friday was my official "last" day of radiation (provided they don't see another growth anywhere), and I have my mask they used to make me stay still for the machine to do it's thing. It's my face, but extended out, as if I'm coming out of the wall. It has white stripes across the eyes, but I never gave the machine the chance to "blast" my eyes. I would sit in the waiting room until my time, practicing yoga, then would go into the radiation room and clise my eyes, waiting for the techs to come in and tell me "Good job" as they released the mask....

They were all amused by me telling them it was going to be painted like Deadpool....

What better memory of the whole ordeal of the radiation than a Deadpool mask seeming to come out of the wall?

Now, it's on to the chemotherapy, which they tell me happens right around Halloween (or shortly thereafter). Wouldn't that be a hoot - a Halloween chemo treatment start? Five days of pills, twenty three days off, and then five more pills, possibly until next Halloween....

Seems right. Halloween was when my grandmother left life when I was the tender age of six. That I should enter the next stage of treatment then seems very fitting.

And for those that want to see my mask:


It'll look better with paint.....

*grin*

Thursday, October 6, 2016

The Good, The Bad, and The Obnoxious

Who is totally sick of all these blankety blank posts about the coming election?  I don't need to see any hands here, as everyone I've talked to who isn't 100% behind their candidate (and who is) are SICK to DEATH of all the ads, memes and other forms of media that are all just negative, negative, negative. What happened to the old days, when the politicians got your vote by coming onto you property, saying what they represented if they got elected to the House or Senate, and got your vote the old fashioned way: by REPRESENTING what they wanted to do and NOT what you were getting if you voted for their opponent?

Take my state, for example, which is run by a bigoted, racist Republican who insists that he ISN'T a racist or a bigot, (Here's just one of the "news flashes" he's been involved in: http://www.pressherald.com/2016/09/26/lepage-releases-three-ring-binder-with-photos-of-accused-drug-dealers/ )  we like to take the news on television or radio after it's been properly researched, documented and, in cases like this year's Presidential, Senate and House of Representatives have "approved this message". We like to pretend that it doesn't bother us that these people might not be "representing" themselves, but are just trying to get to that $174,000 that they want before all else...

And the ads?

They start almost before one has a chance to see who's up for votes.

Here's a few of those who appear on our ads who have NOTHING to recommend them other than their highfalutin big names, typically having an opinion about "their candidate" that takes precedence to do ANYTHING against the "other side" to make sure he or she wins.

(this list will grow)

They do this form of "ad" because there are pros and cons to this, and if they can make you go to the polls - or NOT go to the polls - with your mind all confused about what you're voting on, they win.

And these are some of the numerous links to support or distract from negative ads continuing.

http://www.npr.org/sections/itsallpolitics/2015/08/19/432759311/2016-campaign-tv-ad-spending
http://www.wistv.com/story/33326812/vanderbilt-university-how-effective-are-negative-ads-in-the-trump-clinton-campaign

With all the negativity, do we NEED this?

NO !

How do we change that?

Don't do what they expect!

READ the links and realize that they have take control and only WE THE PEOPLE can stop it!

Do you LIKE having all the millionaires and billionaires coming up with ways to never pay taxes, making YOU pay thier shares? Do you LIKE having the minimum wage so far below a liveable wage while these people control who you vote for with their negative ads? You can change that!

It's time for the common man to step up and force our government to stop these things by voting from the heart instead of the thousands of dollars that they spend on trying to get their way. It's time to get control of the US by saying "This isn't going to work any more."

I have a dream.....

(Addendum 10/13/2016: PLEASE go and investigate your options, think about it, and vote with your heart. This is one such place you can check on tons of people....but don't look for Trump. He has never been a "real" politician, so there are no records.

https://www.govtrack.us/congress/votes)



Monday, September 26, 2016

Ghosties on Parade

Yup, today was the day for more joking from the radiation docs....

I was told that the area of my head that I've lost hair is suitable for a comb over....

*grin*

Time to go for the full-time Sinead O'Connor look....as soon as I can get to the store to get a human-style clipper.

Saturday, September 17, 2016

Ghost Peppers

Week three of what has essentially become a six week stint of radiation has been and gone. Last Sunday, after pulling more and more 10 inch hairs out of my food (food that I had made, disturbingly) was "get this cut short" day. The new hairdo is disturbingly like my mother-in-law's hairstyle (and the look on the hairstylists face when I asked for a "Sinead O'Connor" tells me SHE is no longer popular and I just may want to take a picture with me next time), but as my husband noted when we shared the showered together yesterday, it may not be that way that long. As Jim, a nurse at the desk were I go into radiation, noted "by the third week or so, you'll be losing your hair, but NOT (he rubbed his bald head) like me."

With the driver who lost a couple of family members to cancer noting that my hair may actually become MUCH shorter before I'm through, I've been debating whether I want to (1) just let nature have it's way, no matter what my head looks like (2) paint it up for fun with Halloween spray paints (which would probably be better done after the radiation treatments, when I'm just here at home) or (3) go for the wig/hat thing. This may take a while or may be all three.

Oh...wait.....

I bought a couple of Halloween wigs on special discount a couple of years ago....

One is a mohawk and the other is tiger striped.....

*getting an evil grin, picturing wearing these in as "hats" as it gets colder here in Maine*

THIS could be FUN!!

Thursday, September 1, 2016

Ghost Toasties

We're almost one week in on the radiation. My hubby says he can sleep most evenings, as my ability to glow in the dark has not yet been realized...

But I think I'm using up my glow in the dark capabilities during the day, when my head is complaining that I've abused it. Nothing serious, just the brain pan complaining that something is happening to it, I'm doing nothing, so it has to make my head ache....which makes me sleep my days away.

Meh!

In the meantime, my hubby managed to get me in first of the first...which means leaving the house no later that 7:15 if we want to make it on time for the 8:00 appointment...and having several people who offered to drive me to the appointments pulling away. Oh well. We've found enough people that we can get by.

But there's one thing that has made me stop and want to question the doctor....

I started off with a fairly severe headache. I took some Tylenol, my rice packs, and spend most of Monday with heat on the trouble spots. Tuesday was a little nicer. Wednesday, nicer still. I don't know why I took less Tylenol today, but it is actually seeming to get better....

As the Ghosties become Ghost Toasties, I can hope that this continues for a little while....

But knowing my luck....

Thursday, August 18, 2016

The Ghost Stirs

My husband and I were looking at a calendar, discussing the ghost that was inhabiting my head and when it will be gone....

And I won't be rid of it until November 2017....

*shudders*

It makes sense, as I have five (five and a half, per hubby) weeks of radiation, which, at the most distant, puts me at October 5th before my brain is considered radiated enough to have killed off the last of the ghostlings...

And then one month to recover before they start the chemotherapy at 5 days on, then 23 days off...

*sighs*

Yep! It's going to be November of 2017 before I can officially consider the ghosts busted in my head!

So why is this what I'm thinking of?

Zuul from Ghostbusters

Of course, in between times, I'll have to stutter like Foster Brooks whenever my mind is playing tricks. (Half an hour to tell my husband I was going out to roll up windows the other night because I kept trying to say "roll up"......*sigh*)

Heaven help me!

ADDENDUM 8/21/16: My scheduled is 8:30 am at Maine Medical Center, and the official date of "release" from the August 29th schedule is, indeed, the 6th of October (because of the Labor Day Holiday). Again I say "Heaven help me"!

Tuesday, August 9, 2016

The Ghost in the Machine - Part Two

I'm finally able to make my way to this blog again to relate to you the difficulties that my brain had with this whole "we're going to go into your brain and remove this thing". The tumor that I showed you the last time was a little bit complicated when the doctor got in there to remove it.

As planned, we were at the medical facility to have ourselves checked in. As my husband watched, I was put into a johnny, had a line put in for them to insert medications and liquids, and was wheeled out to surgery. It was an awake neurosurgery, giving the neurosurgeon the opportunity to have me awake and aware - but something went wrong. The first indication was when I started slurring my words. (Let's face it, folks, I sounded like I had a few two many on my way in, but I hadn't had anything.) The doctor went out to my family as I was taken to recovery, and my husband was told that they had caused some minor effects (such as a seizure or two), and I had two recover my speach before we could try again.

The first week was getting the seizures under control. This was, according to my husbands Facebook pages, a bit of a trick. He interrupted things for the nursing staff more than once in which they were ignoring a seizure...And has been my primary fighter when if comes to letting the doctors know what they have in their neurosurgery department as far as nurses.

The second week became a bit of a race for my doc. He had a glioma to continue getting out, but my speech was sketchy, at best. The result was a four day stint at the New England Rehabilitiation Hospital of Portland. Great bunch of people! Got me saying my words, at least as far the neurosurgeon wanted, in short order and got me in for the second time under the knife for July 19th....

And this time, everything came out all right.

The shit hit the fan when my husband came in on Friday to have my tell him that I had been told I was going home when he hadn't received that memo. He had things that needed to happen before I came home - and he probably needed me to stay in for the weekend, as it turned out.

There was a drug that wasn't set home at all that was important to my survival...

There was a drug that I had one version of that I needed to be taking three of...

And I feel for my husband, because I was in no shape for him to be comfortable leaving me home during that time when he needed me to be.

It's been four weeks since my second surgery. I've been home since the Friday after that, getting myself as ready for the radiation as I can be - including gaining back all the weight lost after all that hospital food. I'm told by the oncologist that I need to be in the best shape I can be to survive the radiation, and I'm trying to built back my muscles.

In the meantime, we're waiting for the American Cancer Society to report to us as to how many days of my five scheduled weeks (or five and a half, as my husband keeps saying) they're going to cover so I can cover the rest. It's one of the sad things about living here. With my license taken away for three months because of the seizures, I can't drive myself to the radioligist, and there are very few forms if public transporation.

We're at the mercy of those who want to live out here or who want to drive through here.

Hopefully, we have enough people who can drive me....


ADDENDUM 8/17:  We've received our "Action Plan" from the American Cancer Society - and there are no "free rides" for me from here. I only hope that they've got my schedule for me to be able to provide my own rides....

Monday, June 27, 2016

The Ghost In The Machine

Back in March, my husband was told he would be undergoing surgery on his ankle to repair years of damage. For months now, this was the day that he was to go under the knife with a very long recovery afterward. In preparation, he's been going out on fishing trips, as he was to be eight weeks of no weight bearing and he wanted to enjoy the outdoors before he was "incarcerated".

The last of these trips I was to go with him, and beginning on Saturday, June 18 with a tribute concert for a group called Rusty Rocket that collects money for musical instruments for schools, our vacation began.

Heading north on the morning of the 19th, we made our way deep into the Great North Woods of Maine, camping out next to a boat landing roughly 50 miles from Millinocket. He likes to fly fish and it's a great lake for it, and I was looking forward to several days of reading a good book I'd held in reserve. (I have a very busy job and look forward to any time that I can just sit back in a chair and relax.)

Our one planned excursion on Tuesday involved a drive to Elephant Mountain outside of Greenville (along long dirt roads) to see the crash site of a B-52 from 1963. We were expecting some photos, a few memorials....but not what we found! The historical society (or some such group) has returned all of the wreakage to it's original resting place, and the effect is very sobering...

The description of the hike says that the wreak is a half a mile hike in....

The wreakage greets the hiker at the edge of the trail the moment one steps into the woods. Torn bits of metal, some thrust through trees, litter the trail. At the half mile mark is the lion's share of the debris, all up and down the mountain. The fuselege, most of the metal torn off, sits with a stone marker to those lost and the two survivors.




We go all the way into Greenville and pick up a few supplies, then go back to our camp, sobered by the sight of this piece of history. (Here's the full story, should you be curious: https://en.wikipedia.org/wiki/1963_Elephant_Mountain_B-52_crash)

On Wednesday, it;s "tour the lake day", and I return with some nice color in my cheeks and some great photos in my camera. It's a truly great vacation so far!

On Thursday, we take off for some touring of the woods, looking for critters, but no luck, so we return to camp for dinner and a nice rum and coke. Mine makes me feel slightly ill (not an uncommon event), so I leave half of mine in the glass. We joke about "abusing alcohol" by not drinking it, but doze off with smiles....

Until an hour or so later, when my husband awakes with me doing an imitation of a horizontal earthquake next to him....

At about the time that the dog begins to bark, he realizes I have no clue that I'm having a seizure, so he does his best to help, holding me so I don't bash my head on the ground and making sure I'm still breathing. When my body goes limp, he dresses himself and me in the dark, with me just "helpful" enough to make him think strongly of our grandchildren...

Putting the dog into the back of the pickup because he's trying to protect me, hubby then drags me to the truck, adds the dog to my lap, and gets in for the mad dash to the nearest hospital....in Millinocket! Driving up the rough road out as fast as he dares, with one hand on the steering wheel while the other hand is on my pulse, making sure I'm still alive. Some 10 or so miles into the ride, I start opening my eyes, but I can't respond to his anxious questions, and I'm in and out of consciousness. I realize we're driving somewhere, but I can make no sense of what's happening even as my husband makes the first turn toward civilization.

Several miles further on, I come back to myself to see a moose running down the road ahead of us and my husband's voice saying "Come on, moose, I have no time for you tonight." I know that we're driving down the road and that my dog is on my lap because I can feel him licking me, but I have no idea why we'd be doing such a thing when we're supposed to be in bed. I can't make my voice work to ask him....

As we reach the final turn toward town, my voice finally comes to me, so I ask him where we're going and why. He tells me I had a seizure and we're going to the hospital, and I sit in shock, cuddling the dog whose behavior also tells me something unusual happened. When we get to the hospital and I try to slide out to walk in, my whole body feels like I've been tied to the rack. My husband tells the night staff what happened, they take me in for an emergency cat scan after a quick once-over. They can tell there's something not right, but don't have a neurosurgeon on staff, so they have to transfer me to Portland. My husband goes back to break down camp while I'm kept under watchful eyes and the transfer is arranged.

Because of a law that says that my husband can't transport me, he goes home to unload, then meets me at Maine Med in Portland. An MRI is done in the middle of the night, and in the morning, we're given the news: there is something showing that doesn't belong there. Because my husband and I are total goofs, we're saying that line from Kindergarten Cop: "It's not a tumor."

The jokes stop briefly when the neurosurgeon we see this morning shows us a different view from the MRI that shows the true size of the couple of dots and a little swelling (a shaded area) in the left lobe....and says in the same Arnold voice after hearing us do it "It IS a tumor/"

Hmmm.....

The surgery is to be scheduled within a week. My husband's ankles have been put off...again....and I'm still trying to wrap my head around it, but everyone seems to be praying....

No matter what happens next, I have a MASSIVE safety net of people who I can depend on....

As I run my fingers over the tiger on my shoulder, representing my strength, my spirit animal, my fierce spirit, I'm scared, but ready to fight....

I've got this!

(And for those who want to see this, the MRI with the part the doc is worried about circled.


Obviously, I wasn't supposed to light up like that when they put in the contrast.....)

ADDENDUM: The surgery takes place on July 5th, when they'll be taking away part of what you wee in the photo above. I'm still having a hard time wrapping my head around it, but there you have it. I need to have the bad parts removed before they make more.

Friday, June 10, 2016

Angels in my Inbox

I had heard in the past that I am "courageous", but it took everything I had to write a letter - via snail mail - to someone whose name matched that of someone I met in college when I found an address via Google. In a paraphrase of a famous line from Highlander, there was only one...

I have an odd sense of humor, and it comes out at times like this, as I "introduced" myself in a rather tongue-in-cheek manner...

And in my email inbox a few days later, a letter from him stating how he and his wife got a chuckle from my letter. Nice! We're back in touch with a college friend! It will be fun to reminisce about "the good old days"!

I go into my Facebook, and there is post after post about the Stanford Rape Case. The combination of the two sends me back 36 years ago, when I met both the man whom I just reconnected with as well as my husband. Not only was it at the end of my teen years, but it was, in many ways, the end of my innocence.

My father was dying of lymphoma as I was beginning my college education, which was the semester I met my husband (who was, at that time, seeing another woman). (I was going to classes and staying in the dorms during the week and going home to help weekends with a dying family member, trying to pretend nothing untoward was going on. It was one of those times I was called courageous.)

The second semester of college, paid for with Social Security Survivor benefits, my dad had passed and I was, to be blunt, mentally unstable at best. That was when I met this other friend...whose love of Bloody Marys became a part of the character in my first book, Kyle Benton. The second semester was also when I met a group that called themselves "Section 8"  as well as several other good people.

I consider them my angels, because without them coming to invite me out, I would have been sitting in my room, feeling sorry for myself, remembering the stress of that first semester. In addition to the stress of watching my father die, the first semester had also introduced me to someone like the Stanford Rapist - a man who feels his own needs more important than anything involving anyone else in the world. My Stanford Rapist was a little different, however, as he wanted us to marry and I didn't - so he drugged me and raped me for weeks, trying to force the marriage by getting me pregnant...

And as I said, that second semester (and onward for several years), I consider myself to have been mentally unstable. The fact that these wonderful friends helped me survive will always be appreciated.

As to the rapist, I have one thought that goes back to the one whom I only survived with the help of yet another angel, who thought more of helping me than what his crazy roomie might be able to do to him....

I would love to see one sentence for all proven rapists, as this Stanford kid was literally caught in the act and would fall into the "proven" category. Nail their balls to a stump and push them over backward, then they can go home. Consider it a punishment, a preventive measure, and the end of that line in the gene pool all at one simple move.

Yes, I know. Barbaric, isn't it. But think about it....

You get caught like this kid was. Instead of wasting all that time, money and tribulation, not to mention prolonging a poor victims mental anquish by making her wait from January to June to find out this jerk is just getting a slap on the hand, you take him out, pin his balls to the stump, push, and take him to the infirmary.


I pray the young woman has angels like I was granted to get her through....

Addendum 6/12/16: A friend posted this on Facebook, and I know each day that, with these friends, I am truly blessed:



Wednesday, June 8, 2016

I Can See Clearly Now - And Is THAT What I Look Like?

I know this is one of those things that women aren't supposed to like revealing, but I just celebrated my 55th birthday. I've mentioned things in prior blog posts about "the joys of growing old", and, because I also just had to renew my driver's license - and because, after a certain age, Maine tests your eyesight EVERY time they renew - I had to do something I've come to dread over the 35 years since I left my hometown....

I had to go to the eye doctor....

*gasp*

Okay, so maybe for most of you, that's not such a *gasp* as it is for me, but let me just lay it all on the line as bluntly as I can....

I was born with a bum right eye, some kind of family gene type thing, as all my siblings have the same problem to a varying degree. The vision in that eye always was somewhere between 20/50 and 20/75 in my case. From the age of 5 or 6 (I don't remember exactly how old I was, but I remember holding an adult hand walking the streets of Bangor feeling like I was in a fun house with the first pair of glasses I had to wear all the time) to the age of 16, when I had a really intense eye doctor visit to determine if he was going to make me wear my glasses to drive or if I was going to be allowed to just wear them to read, as he had decided I could do when I was 14.

The decision was that, although he was concerned about my depth perception, he granted me the right to drive without my glasses, as the left eye overcompensates for the right one, so although my vision with both eyes is 20/40, it met the criteria for me to be allowed to drive without glasses.

The same has been true since that time, but when I left home after college to move in with my college boyfriend (who has been my husband for almost 33 years now), I left behind that doctor who had been seeing me on a regular basis (sometimes too regular, as I was a little hard on my glasses), and since then, it's been a crap shoot when it comes to finding someone who will listen to what I have to say about my eyes.

Most run me through their test procedures, listen to what I tell them - and then, in 99% of the cases, they've told me that I have astigmatism ("Astigmatism is an imperfection in the curvature of your cornea — the clear, round dome covering the eye's iris and pupil — or in the shape of the eye's lens." per the American Academy of Ophthamology), which means that, in order to try to make that eye see at 20/20, they put a certain type lens in that side of the glasses.....

And, when I put on the glasses and try to use them to read, the screwed up "dancing letters" that my right eye shows me when I try to read with that eye alone take over the landscape. Instead of a fixed bit of information on a page, I'm watching The Rockettes doing a dance routine.....

The migraines follow soon after, as my overworked brain tries to make the dancing stop so that I can read something - anything - on the page.

So, forced to either go to the eye doctor and have my eyes checked or give up my right to drive, I went to a new eye doctor who was listed as the only one in the area who took my husband's insurance and who was willing to take on a new patient. It seemed like the same old same old when going through the exam with the exception of a couple of new tests. (One, involving a very bright light, resulted in my turning at one point at work after the exam and seeing my manager wearing a halo. Knowing that he's not THAT angelic, I took it for what it was: a clear warning that a migraine was trying to take root. I left work early that evening.) When bifocals came into the discussion, as she doesn't call what's up with the right eye "astigmatism", but notes that I have both that issue and am starting to show signs of becoming far sighted (an older person thing, when suddenly your arms can't hold the page out far enough for you to see it clearly), I firmly tell her "No".

"Even the pair of progressives that a prior doctor amended to not have the astigmatism correction caused massive migraines." I tell her. Then I tell her about the last pair of glasses a doctor gave me, insisting that I needed "trifocals" because I worked on a computer. (They were almost pure glass at the top, "distance viewers" in the middle for driving, and readers at the bottom, so I would always have to look down to read.) "They caused more migraines than anything else I've ever tried."

"Okay, this is what I suggest we do." she tells me.

I need a very strong reading prescription, and since I do most of my reading on the job, she wants me to have one pair of straight up "readers" that I can put on and take off when needed. Since she would like me to have the "distance viewers" for the times when I'm having a rough day focusing (I also have allergies, so sinus congestion plays a big role in how well I see on certain days), she would like me to get a second pair, even if they just stay in the car....

So, when I picked out frames, I got a purple metal frame for the "distance viewers" and a gold metal frame for the "readers". (The person in their eye wear area asked me about plastic frames, as I avoided them rather bluntly. I related the fact that, from past experience, metal bends and can be re-formed long enough to get a new pair of glasses made. Plastic simply breaks, so there's that old "tape in the hair" trick for the duration of waiting for the new pair if the pair is even vaguely repairable.) When both pairs I chose had the "expandable bow" feature (so that, if something bonks you on the head, the bow has some "give" before the glasses fall off your face), I saw in her eyes that she realized the truth: I'm a klutz and have gone through a TON of frames!

Then came the "special features": just the basic on the pair that is likely to only be used in the car, but scratch and impact resistance added to the readers. (A good idea, it seems, as I dropped my brand-new readers four times at work - more than once on the cement floor in my back room - and they didn't collect a single tiny scratch.)

I picked them up yesterday morning, and when I put on the readers and held up a "test sheet" to see if they worked well, I was floored. "Oh my God!" came out before I could control the words. "I can clearly read even the 6 point font." (I was holding the page at a very comfortable reading distance, with my elbows just barely bent. I haven't been able to clearly read that small a font without straining for a couple of decades.)

With the distance lenses, I could look out the window and clearly read the signs in the parking lot, but they were almost the strength of my former readers. I could clearly read the 12 point font, but not the 10, as the smaller letters looked like they were doing the watusi. Once both pairs were adjusted so that they fit properly, I wished them a good day - and put on the distance viewers for a "test drive" before I left the parking lot.

A half an hour later, when I got back home, I went onto the eye doctor's web site and gave them a rave review. Not only had I worn the distance lenses for the drive without the tiniest inkling of a migraine trying to pay a visit, but I had stopped at a store and picked up a couple of things, changing my glasses to read a small price tag. No letters on any of the street signs or in the store appeared to be trying to take dance lessons. There were no halos, no slight twinges in the area around my right eye, no shooting lights (another of those "warning signs" of a migraine).

With the exceptions of deciding that I need one of those little "ropes" that the librarians always seemed to use to keep their readers right there around their necks (and preventing Yours Truly from seeing if "impact proof" means my glasses can be dropped from the top of a six foot ladder) and that I can't keep the readers on my face to walk, since all is out of focus within an arm's length of my face, the new readers also didn't cause any migraine warnings in the eight hour shift I worked. They blew my co-worker's minds, however, as they've become used to seeing me with glasses on from just after I sign in until just before I sign out for the day. Seeing me buzz around with the bow of my glasses tucked into the open collar of the uniform shirt kept causing double takes.

So, for those of you who live in Maine and would like to visit this miracle worker who has me wearing the first pair of prescription lenses I've been able to successfully tolerate since 1981, the company is Brighton Eye Care in Falmouth, Maine. The doctor I saw was Dr. Kimberley Goss. 

And what made all the difference, in my humble opinion, between this office and every other one I've walked into in the past?

It's something very simple and an art that I find is dying in our modern world: Everyone, from the receptionist who had to struggle to get me an appointment on a very restrictive work schedule to the beautiful young lady who adjusted the two sets of glasses so that they look "marvelous" yesterday, LISTENED TO ME. Dr. Goss is the first one in forever to tell me that, although there is a definite birth defect that makes my right eye weaker, she doesn't think it should be called "astigmatism", as that's a "very broad term that can cover all kinds of other defects to the eye". She's the first one since the man who saw me for my young life who understands that, no matter how much she would like to give me 20/20 vision in both eyes, that's very detrimental to my health and well being - and, when I'm trying to drive and the car coming toward me is doing the samba because I'm trying to wear lenses that allow the birth defect to rule the world, it can be very harmful to other people as well.

I don't know about any of my Constant Readers, but even with a pending "jail term" looming in which I will be home trying to assist my husband with recovery from a surgery, I'm starting to feel like 2016 is going to be my year....

I have a loyal "fan" base for my work who are becoming more and more vocal about getting people to buy my books, which showed in the increase in sales over 2015.

I'm starting to get Northern Bard Publications products into local bookstores (which will hopefully spread to other states in the near future).

I have glasses I can actually wear that are going to make my life better and make my "side job" easier to do as it will reduce the eye strain I've been suffering.

And, each time I check my "traffic report" for this blog, I'm honored to see more and more countries represented...

Once again, thank you to all who come and read these little episodes that I think of as sort of a mental cleansing, similar to a colon cleansing as it gets a lot of the random pap that would normally be floating around in the cobwebby recesses of my brain pan, gumming up the works. I know most of what I speak of may not be universal problems, but by being able to clear my head, I allow space for the characters who need me to tell their stories to step up and be counted....

Now, back to our regularly scheduled "program", which today involves trying to figure out how to fit the 9 feet of product onto the 8 feet of shelving space that someone in our corporate office set up for me to try to set last night. "Perhaps," whispers a small voice in the newly cleared out space that the above was taking up, "there is a way to put those products on a slight diagonal, so that they're visible, but not quite square to the edge of the shelf....."

*picturing this set up as I publish this post*

Sunday, June 5, 2016

I Love the Smell of "Whatthehellisthat" in the Morning

For any who have never been to Maine, we like to say that we have our own way of life here. We're a little behind the times in a lot of ways, and we like it that way. Progress smogress, we like things the way they always have been.

Like our homes.

Those who can't afford a piece of land to put a trailer on while you build your own house usually live in something that has stood the test of time. Sure, there's new buildings going up all the time, but most of those are being sold to the people that come here "from away"...and that means that, unless your birth certificate states that you popped out of your mumma right here in a hospital within the borders of this state, you're "from away".

Because I left for 18 months and lived in Florida long enough to give birth to my eldest child, I'm still a Mainer, but he's "from away". Same with my daughter, who was born in New Hampshire because it was a faster drive to that hospital than to the one in Bridgton. We were living in Maine at the time, but she's "from away".

My friends "from away" think the crazy little farmhouse I live in is "quaint" when they come to visit. It's basically a little ranch house that had sheds and a barn attached at some point in it's history. The barn was gone well before we bought the place, but the sheds had been "added in" to the downstairs rooms by someone who randomly knocked out walls. This same person, who seemed to like odd spaces, added on to the side of the building a couple of times as well. The place we boughr has odd corners, strange accoustics, and lots of weird places where rodents can hide....

and, much to my dismay at times, to expire while hiding, making me want to award the little beasty the trophy for "hide and seek champion", but first I need to dispose of the body and get rid of that smell that was permeating my kitchen and made me begin the gruesome game in the first place...

Heaven help me if they ever do a search of my search history. This little 'guess what died in your house this time" game doesn't happen all the time, but I'm getting older and don't remember from one time to the next what worked best. I have to do that search again for "removing the smell of a body" and jog my memory with the options. And then, because OCD should be included somewhere in my name, I tear the whole room apart, cleaning into every corner, making the whole room sanitary....

And then we'll go a month or so....

And then, because it's Maine and life goes on here the way that it has for centuries, the little beasties will ignore the baits and the traps and work their way into some odd crevice, either to get stuck or to hide because we have foxes outside our house that sometimes damage a mouse internally, but lose it before the kill. Some morning, I'll step down into the kitchen and mutter what my husband swears is now a single word....

Whatthehellisthat?

And the search will begin again, and I will find the "hide and seek champion" in some odd place, dispose of the body and search the internet for the tip that seemed to work best last time, get rid of that horrible smell, and life will go on...

Because it's Maine and it's The Way Life Should Be.

Sunday, May 29, 2016

The Circle of (Retail) Life

For those not aware of this fact, I'm NOT a "New York Times Bestselling Writer". To be that, you have to have your books in bookstores, as it's all based on sales in bookstores. Until the past month, none of my books have appeared on bookstore shelves. Until I get the books on more bookstore shelves I don't stand a chance of selling enough books to be noticed by the New York Times, and without those sales, my writing career is moving along as slowly as a herd of snails traveling through peanut butter...

So I work retail, and I notice things that stay in the back of my mind, keeping to themselves and staying out of sight, rather like a coyote living in Central Park, but then I accidentally shine the flashlight in the wrong direction when I'm looking for some other lost tidbit of information and catch the gleam in the thing's eyes....

Such as when I found two packets of pens that are supposed to hold 8 pens in 8 fun colors this past week...

Both packets were missing the purple, the pink, and the turquoise blue pens. Both had to be written off as "stolen", the entire package, because no one wants a package of 8 fun colors that only contains 5 rather more normal colors.....

And as I wrote them off, some little train of thought left the station, traveling around my mind in one big circle that started with "Why would someone do such a thing?"

The answer, according to some on the reality crime dramas I sometimes catch when I'm looking for something to play in the background while I do some work, is that "Prices have gone too high, and I don't have enough money left over at the end of paying my bills to do anything fun, so when I see something I really want, but can't afford, I try to steal it. And when I get away with the first thing, I come back and steal some more.".....

If you ask corporate America what the number one thing is that drives the prices higher, they'll tell you "Theft and the things we have to do to prevent it." There are security cameras that companies now buy, security guards in some stores, little boxes and wires with alarms that products are put into or wrapped with, and little stick-on tags that will set off alarms at entrance and exit doors should you try to leave with the product. There are even security tags on clothing now that will destroy the product you're trying to steal buy shooting dye onto it - and sometimes you - if you try to steal it.....

All of the security measures needed to prevent theft cost money. Although the products we buy now are usually made in sweat shops to save on labor costs, the costs for the security needed to keep the finished product on the store shelf long enough for an honest person to walk in and purchase it has skyrocketed, so the cost is added to the cost of the product, putting the costs of things up so that the average human being can't make enough to be able to afford all the necessities, so some turn to theft....

And so the circle of life progresses, and makes me want to knock the wheels off this train by stopping the thief and saying "YOU'RE why we can't afford to buy nice things!"


[There is the sound in the background of a train whistle, sounding almost terrified; the screech of the iron wheels against the iron rails as the train tries to stop suddenly; the crash of the cars tumbling in disarray on the trees lining this part of the train track; and then, blissful silence. We have successfully derailed this train of thought.]

Saturday, May 14, 2016

Just when you thought it was safe to step into a bookstore.....

Like most humans, I sometimes step up onto a soap box on Facebook to rant a little and get opinions from my friends....

254 on my personal list as of the writing of this post (May 14, 2016)....

And about 150 of them are related.....

Of the rest, they are fairly equally divided between current and former co-workers, people I've known since Jesus was a child, and folks whom I met in various places who are none of the above...

But before I reveal what happened with this little verbal diarrhea post from last week, let me step back about 18 years ago.

*cues the organ music and the smoke machine used in old movies to indicate a time shift*

I had been struggling to find the time to finish my first full length novel for a couple of years, and then I did some damage to my lower spine. Under doctor's orders of "no bending, no lifting, no twisting" for two months in the fall/winter of 1997, I finally completed the book. Over the next year, I did the laborious work of editing, then sent "sample pages" to various publishers who said in the Writer's Market (because I had that in my home in book form, having only just been introduced to the internet) that they accepted queries from unagented, new authors...

I got turned down repeatedly - usually with the excuse "It promotes violence against women."

(Interior thought, which even now interrupts, is always "My little heroine, at the age of 16, decides the best way to escape from a man who wants to kill her is to disappear into the night, explaining who she is and why, when we see her again, she's using a different name. It promotes what?")

I sent out a "spam" email to everyone I had on my list, asking if anyone had any idea where I could find an agent who'd work on commission....

and a friend suggested someone who was doing a new kind of publishing called "ebooks", but since she couldn't get any of the big authors, she was looking for unknowns who would accept a portion of royalties on each sale instead of an advance. This was before Kindle and Nook, so she actually sold a file that one could read right on the computer..She was having as hard a time getting books to offer as I was having getting someone to read my book all the way through instead of judging on the first few paragraphs...

So "Night of the Tiger" was first published because a friend made a suggestion.

Jump forward to two years ago, when I did a verbal diarrhea post about paying a friend to photoshop a cover for my second book, but some strange things happened when the publisher printed the first book (different colors, spots in the model's hair, things that got corrected, but were quite annoying...)
and someone said "Have you ever thought of becoming an independent publisher?"

And I had already been looking at the printing company they suggested....and then, as I was putting up a fan page and got in touch with a model to request permission to print some of their photos to represent the face and form of my character.....

and he offered to do the cover.....

and the rest, as they say, is history, with Northern Bard Publications producing "A Wild Tiger's Heart" with a little help from my friends.

Shortly after NBP's first foray onto Amazon, someone suggested redoing the others in a matching size...and friends volunteered to become "partners in crime" at my independent company because they want to help me out. So I have someone who truly LOVES to play with photoshop and take photographs that mean something to my words (or to another author's words, should we ever have a client).

Friends helped me get "The Tiger's Cub" and "Night of the Tiger - The Author's Cut" (because I corrected a couple of things that had been bugging me all this time) up for publication within a year of our first book.....

Anf last week, when I was grumpy because here I am, a Maine author being published in Maine and with characters FROM Maine, but I can't seem to get any bookstores to put me on their Maine Authors shelves in their bookstores, many because I'm not with that big publishing house that they have special deals with, a friend made a suggestion that I speak to a friend of hers in one of the cities near me....

As I keep seeing a meme on Facebook say, "It was deja vu all over again"....

A small Maine bookstore wanting to have Maine Authors on her shelves, but can't afford to do the deals with the big publishers because she has a very small budget meets a Maine Author tying to get her indie publishing company books onto bookstore shelves. A consignment deal is struck, the details are ironed out, and I'm still in shock....

This is her business card





but if someone sees it on her shelf and tries to pick in up someplace else for a friend and it's a bookstore I've tried to cut a deal with in recent history.....

*cue Pink Floyd's "Money" as I fade back with a smile*

Addendum 5/18: When I arrived home from work yesterday evening and checked my emails, I was in for another surprise. Having contacted Bull Moose Music & Books, another Maine-based company who had turned me down when I was publishing through Write Words Inc because she wasn't offering enough of a discount for them to be able to offer the books at the price they prefer, I suggested that, at least for the stores closest to me, I would love to be able to do a consignment deal with them as well. They turned me down for the consignment, but because my contract with my printing company allows for the books to be offered through the catalog they send to bookstores and libraries....

I HAVE A SECOND BOOKSTORE!

I'm not sure when they'll appear, but the buyer for Bull Moose was thrilled to be able to order some books to go on their shelves the next time she's placing an order! I may walk into one of my favorite places to shop and find myself there very soon!

And here is the logo for the SECOND bookstore:


I'm hoping that, if I go into a few more of the local bookstores while I'm out and about on Saturday, I can have a few more pick up the books for their Maine Author shelves....and then, perhaps, some of the larger chains will pick the books up when people are coming in to try to get them after seeing them in the local shops.....

As my husband has been joking, the starving artist part has been well played for the past 19 years. It might be nice to have me be able to take us out to dinner before the end of the year....*grin*

Thursday, May 12, 2016

Let me introduce you to Uncle Daddy.....

Genetics.

I've mentioned it in prior posts several times, and it's being talked about among myself and several relatives on Facebook this week as we try to figure out where the gene for fibromyalgia may have come from. Until this past month, when two of my husband's nieces found me on Facebook, we were blaming the fact that my mother's ancestors came over on a boat from Normandy in the 1600's, settled in Canada, and started inbreeding.....mostly because, in this new country, there were fewer people available to chose from when wanting to marry and reproduce.

And, of course, just about the time that the nieces both told me that THEY have fibromyalgia, which my husband shows no signs of, but probably stems from his line with three of five females from my husband and his sisters having it, there was a show I caught on PBS about why Prince William was allowed to marry a commoner in England....

which, in turn, started me on a new tangent with the whole research into my family tree part of my life. I started researching when, exactly, man caught onto the fact that inbreeding, incest, etc. were "very bad things", but I still haven't found an exact year or instance that caused the research to think about recessed genes and such. There is an article that mentions animal husbandry in the British Agricultural Revolution of the 18th century, but that's the closest I've come to pinning down when, exactly, this started being noted as the reason for congenital defects. Obviously, it wasn't noted soon enough to bypass some of the mutations I've been speaking of in other posts that have come into my life as I age, but since the same article also mentions that the bible and other sources can trace the negative connotations of imbreeding to over 1500 years ago. Too bad humans tend to use the bible to "cherry pick" what they want to shove down someone else's throat, but didn't note the "don't do this, it's bad" for anything other than what they wanted to quote....

*smile*

But for a shortened history of what the television show pointed out (and which I've confirmed through a couple of sources since),. humans seemingly recognized inbreeding in animals long before we caught on that inbreeding in humans was just as bad - and it exists in the history of every country. Consanguineous relationships (second cousins or closer) result in birth defects, among other things, and the House of Habsburg, which is what the television show was about, shows how one family's attempt to rule the entire world by marrying royalty to royalty, limited the gene pool for "purity", resulted in a bunch of hemophiliacs. In short, if the Russians hadn't put an end to the Tsars by murdering Tsar Nicholas II and his entire family (including Anastasia, much as the Don Bluth film of the same name would have had you believe she survived), the Tsesarevich Alexander III, who suffered from hemophilia and could well have stepped on a tack and bled to death.

Over the past week, as I've been doing more and more research into this to see if there is a way to trace some of the "family health issues" and my daughter has been finding other family members who were diagnosed with fibro a couple of decades ago (giving her someone she can trust to tell her what to expect for her own life), I'm starting to be rather glad that my mom had the common sense to say this to me when I was coming home from school, all doe-eyed about some guy I'd just met.....

"You may want to talk to your grandparents on that one. He MAY be related....."

and, as more and more familiar last names pop up in the family tree and I'm able to trace those last names to the parents or grandparents of my very brief "crushes", she was right.

If I had rebelled by insisting on dating those men, I could have had my own little inbred babies with issues much greater than fibromyalgia......