This past week, I mentioned Aphasia in a post on Facebook.
Someone from the Aphasia Center of Maine got in touch with me. (https://www.aphasiacenterofmaine.org)
I FINALLY have someone who knows what I'm talking about!!!
My husband blames the aphasia for "not getting better". He was led to believe that aphasia wasn't going to be a part of my life, that it was going to "get better". I believe this came from the neurologist who was insisting that I WASN'T going to "lose [your] hair" and who refused to believe otherwise.
He was a very good doctor at getting me through the surgeries, but he wasn't very good at the non-surgery meaning of cancer. He was insisting that "everything will go back to normal once the radiation and chemotherapy gets done".
RIGHT!
That's why I can't control my words after noon-time.
That's why my husband looks at me when I can't pronounce "neutral" - or "they're" (pronounced "they are" when I can't make him understand) - or any of the other things I try to say that comes out like Daffy Duck trying to do Elmer Fudd - on helium, at times.
I can believe the neurologist who took over the chemotherapy and onward saying that "it's going to be a LONG time before [you] can speak right again" - if at all.
I can put films from others who have suffered four years (or more) with no real relief.
And I can feel better about my own difficulty, because I'm a novice at this and don't have the difficulties that many others have, some are unable to operate as they used to because they had a stroke.
I have been blessed, no matter what my difficulties are, and I feel fine!
Blessed be.
Someone from the Aphasia Center of Maine got in touch with me. (https://www.aphasiacenterofmaine.org)
I FINALLY have someone who knows what I'm talking about!!!
My husband blames the aphasia for "not getting better". He was led to believe that aphasia wasn't going to be a part of my life, that it was going to "get better". I believe this came from the neurologist who was insisting that I WASN'T going to "lose [your] hair" and who refused to believe otherwise.
He was a very good doctor at getting me through the surgeries, but he wasn't very good at the non-surgery meaning of cancer. He was insisting that "everything will go back to normal once the radiation and chemotherapy gets done".
RIGHT!
That's why I can't control my words after noon-time.
That's why my husband looks at me when I can't pronounce "neutral" - or "they're" (pronounced "they are" when I can't make him understand) - or any of the other things I try to say that comes out like Daffy Duck trying to do Elmer Fudd - on helium, at times.
I can believe the neurologist who took over the chemotherapy and onward saying that "it's going to be a LONG time before [you] can speak right again" - if at all.
I can put films from others who have suffered four years (or more) with no real relief.
And I can feel better about my own difficulty, because I'm a novice at this and don't have the difficulties that many others have, some are unable to operate as they used to because they had a stroke.
I have been blessed, no matter what my difficulties are, and I feel fine!
Blessed be.
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