Facebook leads to Aphasia relief.....

This past week, I mentioned Aphasia in a post on Facebook.

Someone from the Aphasia Center of Maine got in touch with me. (https://www.aphasiacenterofmaine.org)

I FINALLY have someone who knows what I'm talking about!!!

My husband blames the aphasia for "not getting better". He was led to believe that aphasia wasn't going to be a part of my life, that it was going to "get better". I believe this came from the neurologist who was insisting that I WASN'T going to "lose [your] hair" and who refused to believe otherwise.

He was a very good doctor at getting me through the surgeries, but he wasn't very good at the non-surgery meaning of cancer. He was insisting that "everything will go back to normal once the radiation and chemotherapy gets done".

RIGHT!

That's why I can't control my words after noon-time.

That's why my husband looks at me when I can't pronounce "neutral" - or "they're" (pronounced "they are" when I can't make him understand) - or any of the other things I try to say that comes out like Daffy Duck trying to do Elmer Fudd - on helium, at times.

I can believe the neurologist who took over the chemotherapy and onward saying that "it's going to be a LONG time before [you] can speak right again" - if at all.

I can put films from others who have suffered four years (or more) with no real relief.

And I can feel better about my own difficulty, because I'm a novice at this and don't have the difficulties that many others have, some are unable to operate as they used to because they had a stroke.

I have been blessed, no matter what my difficulties are, and I feel fine!

Blessed be.

Almost two years already....

On June 24, I pass the "emergency run" from Nesowadnehunk Lake to the Millinocket Hospital.

We finally got the final bills paid off.

We can see the trees instead of just the woods now.

We actually have our bank actually courting us for a deal on what we owe them instead of suggesting another bank.

But I'm still suffering aphasia, which means that, after about noon, I can't function properly with my words - at least, the spoken ones. I can write like no ones business, but that doesn't help when one is around someone who doesn't want to read and insists that I get over it.

So, this morning, I got into the internet to see who has anything that Cancer Survivors can do...

And was disappointed by fact that, no matter who is meeting with Cancer Survivors, they do it at 5, or 6-8, or........

In other words, nothing that will help because it's all in the evenings, when aphasia is rampant and nobody wants to read what I have for them.

*sigh*